Resources
Below are some internet resources I’ve found useful over the years. What resources have you found on the internet that were helpful? Please let me know and I’ll add your resource to the list.
Mild Traumatic Brain Injury
Site provides free articles and videos for patients and caregivers about concussions (mTBIs), symptoms, challenges, recovery, and accommodations.
Site provides information about the brain and injuries to it, both traumatic and acquired (e.g. stroke), along with resources like personal stories, webinars, and research.
Site provides free articles offering general information about mTBIs and various symptoms, their treatment and accommodation. A search for Mild Traumatic Brain Injury brings up additional articles.
Site discusses the various types of TBIs, and the causes and preventions, along with additional resources.
Site brings together scientists, clinicians, patients, policymakers, and others to encourage research and new ideas. The site allows free access to their research.
Site is a digital magazine devoted to information about the brain.
Site provides a free library about brain injury, both acquired (like a stroke) or traumatic. They offer in-person supports groups in New Hampshire, and an online mTBI support group.
Chronic Fatigue and Fibromyalgia
Site provides an extensive free library of science-based articles, books, and videos about ME/CFS and fibromyalgia: what they are and how to manage them. Some are in Spanish, others are directed to family members to help them understand these illnesses, but most are for English-speaking patients. The non-profit also offers low-cost classes to provide support in learning about and managing the illnesses. Scholarships are available.
Site provides information about ME/CFS: symptoms, causes, diagnosis, treatment, and what to expect when seeing a doctor.
Site provides information about fibromyalgia: symptoms, causes, diagnosis, treatment, and what to expect when seeing a doctor.
Organization commissions and funds for ME/CFS research: causes, treatments and consequences. The site reports on the results of these studies.
Organization is a non-profit that brings together “the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world” to sponsor research and advocacy. The site provides information for patients and caregivers, and lists online support groups in the U.S.
An app that helps you pace; that is, helps you to not use more energy than you have. It comes with an arm heart monitor that measures heart rate in real-time. The app suggests both a heartrate limit and an energy usage limit, both of which you can change. The app notifies you when your heart rate is above the set limit and warns you if you are at risk of exceeding your energy usage limit. The app has additional features.
The annual service fee is currently under $100. The website requires you to go through many pages before signing up, but the app itself is easy to use. I find Visible useful for me, but like all aids and treatment for ME/CFS/fibro, Visible won’t be useful for everyone.